Closing date: Wednesday 15 January 2020

Queensland Genomics Health Alliance

Queensland Genomics seeks to recruit two (2) health consumer representatives to be a part of their Community Group.

We are seeking expressions of interest from:

  • Consumers or carers with an interest/passion in genomics or personalised medicine, and
  • Consumers or carers to have experience accessing or caring for a person in the disease area of cancer 

The Queensland Genomics Health Alliance (Queensland Genomics) established a community advisory group as a part of its startup activities to provide diverse, informed and valued community input into the program.

As the program has developed since its establishment in 2016, it seeks to recruit two new members to the Queensland Genomics Community Group, to increase health consumer representation and to ensure we include the perspectives of consumers from disease specific areas, which  the program now includes.

Queensland Genomics is a $25 million program funded by Queensland Health and administered by The University of Queensland. Their 5-year vision is to demonstrate the value of genomic medicine in everyday healthcare in Queensland, by fostering collaboration between health care providers, researchers and health consumers.

The Queensland Genomics Community Group represents a diverse group of stakeholders made up of patients, their families, Queenslanders more broadly, as well as healthcare providers and researchers.

For more information about Queensland Genomics visit https://queenslandgenomics.org/

For more information about the Queensland Genomics Community Advisory Group visit http://queenslandgenomics.org/about-us/#community_group

What is Genomics

Genomics studies the unique genetic make-up of individuals and is set to revolutionise healthcare. It will lead to better prevention, prediction and diagnosis of disease, and improved treatment, management and cures. Genomics is an important emerging field in medicine that have increasing relevance and impact in general practice. Genomics plays a role in many conditions seen in primary care everyday including rare diseases and chronic conditions such as cancer and diabetes.

Purpose

The Queensland Genomics Community Group is an active collaborator within the health system working with researchers, clinicians and communities to facilitate equitable and accessible person-centred care for all Queenslanders.

The Queensland Genomics Community Group leads projects that align with its strategy and plan. Our objectives:

  • To collaborate with Queensland Genomics and support its vision and mission
  • To serve as an active conduit to consult, promote, and engage the people of Queensland in the work of Queensland Genomics and its partners
  • To support the development of a health system that delivers the earliest possible diagnosis, appropriate intervention and follow up, and responds to patient needs in a flexible and nuanced person-centered way
  • To advise Queensland Genomics projects on better ways to link and communicate with patients and their families, helping to ensure a patient and delivery focus

The Queensland Genomics Community Group brings together representatives from across the medical genomics community including patients, clinicians, researchers and health administrators.

The Community Group’s Strategy and Terms of Reference can be accessed here.

Role of the consumer

The role of the successful applicant will be to attend all Community Group meetings and to actively participate in all Steering Committee activities such as pre-meeting reading, discussions, provision of feedback and advice.

Out of session work may also be required through the successful applicant’s involvement in working groups for projects led by members of the Community Group.

Who is it for?

This opportunity would suit a health consumer or carer representative with an interest in genomics or personalised medicine.

At least one of the new recruits will need to have experience accessing or caring for a person accessing cancer services.

Time and location

Meetings are held quarterly during business hours and are usually 2.5 to 3 hours in duration.

Meeting are held in Herston. Members may dial in, but we ask that members attend in person at least 2 meetings per year. Travel can be reimbursed.

Remuneration and Support

Due to the nature of the content, pre reading and preparation for meetings is essential.

Consumers will be remunerated in line with Health Consumers Queensland’s guidelines. The successful consumer/or carers will be reimbursed for their time at the meeting as per details below:

  • $187 for meetings 4 hours and under (including pre-reading and travel time)
  • $374 per meeting over 4 hours (including pre-reading and travel time)

Parking and travel expenses can be reimbursed. Where a member is an investigator on a Queensland Genomics project, a Queensland Health employee, or a paid employee of a consumer, patient, carer or health peak body, remuneration and reimbursement will not be paid.

Queensland Genomics will provide orientation and ongoing support for the successful consumer representatives, including pre and post briefing meetings.

How to apply

Please complete this consumer application form and return to consumer@hcq.org.au by Wednesday 15 January 2020  

For assistance please contact Health Consumers Queensland via consumer@hcq.org.au or by phone on 07 3012 9090.

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