The challenges for Health Consumers Queensland and Queensland Health mean we need to work closely together to ensure consumers are brought in at the right time to influence plans, and public-facing communications and directives.
Here we update you on the latest work with consumers and staff and share how consumer input is impacting how Queensland Health is supporting and informing Queenslanders around COVID-19.
Join the COVID-19 Community of Interest
Health Consumers Queensland has been having regular video-based Consumer Conversations about the Queensland public health system’s response to COVID-19 with groups of health consumers and carers across the state. To take part in these Conversations, join our COVID-19 Community of Interest
An inclusive Queensland matters for all Queenslanders
Health Consumers Queensland was one of eight state-wide organisations who co-hosted the Make Disability Count 2020 State Election Virtual Forum last Thursday, 8 October.
Over 200 people registered to attend and five political parties joined us to answer questions that are important to people with disability, their families and the organisations that support them.
Together with Queenslanders with Disability Network, ADA Australia hosting the Aboriginal and Torres Strait Islander Disability Network of Queensland, National Disability Services, Queensland Alliance for Mental Health, Community Services Industry Alliance, Queensland Advocacy Inc., and the Queensland Collective for Inclusive Education, we all called on political parties to commit to seven priority policy areas:
- Independent individual and systemic advocacy
- Investment in frontline community services
- Disability leadership, governance and accountability across mainstream services
- A dedicated Minister for Disability and Inclusion;
- Human Rights
- Sector capacity
- Inclusive education.
eAlert: Culturally and linguistically diverse consumers, are you having your needs met during COVID-19?
Welcome back to everyone after the September school holiday break. We hope many of you feel refreshed and revitalized as we head towards the end of this long year.
We kicked off our return to ‘’business as unusual’’ this week by hosting an important conversation with more than 40 people: Culturally and linguistically diverse (CALD) and non-CALD consumers, NGOs representing the interests of CALD consumers including World Wellness Group and the Refugee Health Network, and staff from Queensland Health’s Disability and Multicultural Health Unit, the Social Policy Unit, the Statewide Lead for COVID-19 for Aged Care and Disability and the Strategic Communications Branch.
Since April 2020, the Department and stakeholders representing CALD communities in Queensland have been working together to develop policy and action plans for a COVID-19 response that meets the needs of culturally and linguistically diverse people. Throughout this time, Health Consumers Queensland has also been listening to culturally diverse consumers who have shared their experiences of accessing health care during the pandemic and expressed their concerns and views about what is still missing the mark. read more…
Health Consumers Queensland is delighted to announce that, for the first time in our public health system’s history, consumers are sitting across almost all the key governance committees in the Department of Health (known as Tier 2 System Advisory Committees).
Eight out of the nine committees have representation from consumers, clinicians and First Nations people as well as an organisational representative from Health Consumers Queensland. The System Management Advisory Committee is the only exception, with a decision by the Chairs to have clinicians and First Nations people on the Tier 2 committee, and consumers on their Tier 3 sub-committees.
Do you remember back in April, when Annastacia Palaszczuk was telling Queenslanders that containing COVID-19 was going to be “a marathon, not a sprint”? Fast forward to the last few weeks in August, we are watching what is unfolding in Victoria and New South Wales, continuing to have concerning cases appear in Queensland and coming to accept that this is not all going to be ‘all over by Christmas’.
Indeed, one consumer remarked how people keep talking about ‘’post-COVID”, when really we all need to be focusing on how the health system and consumers can be supported to maintain and access regular health services and care, alongside sustaining a constant state of readiness for COVID-19 outbreaks, care and containment.
Jessica Bean is an experienced health consumer and a member of both our state-wide network and COVID-19 Community of Interest group.
Last week we heard her share her thoughts during a focus group with Health and Wellbeing Queensland on the best ways to engage with consumers and she spoke about the importance of our Issues Papers for consumers as an example of best practice.
Following the lockdown of residential aged care facilities across South Brisbane and in the Moreton Bay region last week, Health Consumers Queensland and a consortium of six NGOs (including COTA Queensland, Queenslanders with Disability Network, ADA Australia, Palliative Care Queensland and CarersQLD) co-designed a single checklist and provided a series of resources to enable residential care facilities to communicate effectively with residents and families during an outbreak.
As part of this work, Jo Smethurst facilitated a training session to help facility managers understand the importance of communicating well when/if COVID-19 impacts their facility, and develop a comprehensive communications plan to enable them to be responsive to the individual needs of residents and families. This training session was part of a week-long training series led by the Office of the Chief Nursing and Midwifery Officer in Queensland Health.
Queensland’s best defences against a sustained outbreak of COVID-19 via community transmission are quarantine, border controls, testing and contact tracing.
Ahead of reports of new cases of COVID-19 in Brisbane this week, 21 consumers had already joined forces with Department and health staff, Queenslanders with Disability Network and Palliative Care Queensland at a Consumer Conversation on Tuesday to share their views on the top barriers to testing and what can be done to address these and encourage more people to get tested.
During the conversation, it was clear that consumers are looking for a clear and unambiguous testing pathway which is convenient, supportive, nuanced and needs-focused. Yet fear, uncertainty, confusion, misinterpretation and complacency are rife.
Specifically, consumers identified the following ongoing barriers to testing:
- Difficulty interpreting advice about symptoms
- Unclear testing pathways
- The logistics of having a test and managing the consequences are too complicated and overwhelming
- The need to self-isolate (for several days in rural areas) while awaiting results
- Pain and trauma associated with testing
- Perceived lack of social responsibility amongst certain groups of people
- Fear of stigma and retribution if people do test positive
New grant funding underpins our consumer-focused COVID-19 initiatives
Health Consumers Queensland has been successful in securing grant funding from Queensland Health to support our continued COVID-19 service provision. As one of more than 130 community-based health service groups across Queensland sharing in more than $30 million, the grant will help Health Consumers Queensland to continue the delivery of a number of consumer-focused initiatives.
This additional funding will support:
- continued consultation with consumers on planning for continued and future pandemic situations
- a new project to engage with young health consumers about their experiences during COVID-19 pandemic (check out the
- opportunity to join our Youth Reference Group in this eAlert)
- evaluation of the strong engagement approach taken by Health Consumers Queensland and Queensland Health during COVID-19.
We are so pleased to be able to continue to support the vital voice of consumers during this time.